This just in from Camp Kennebec on day 2:
Ben slept fantastic last night. The storm was brutal but we got through it. Ben and I just got back from fishing. He caught 4 fish and we saw a huge turtle. Was amazing.
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Postingan Populer
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I just read this exquisite piece by Kari Wagner-Peck, above with son Thorin, 8. Thorin attended Grade 1 at public school last year in Portla... -
By Sandra Joy Stein When my son was two years old, he played like most toddlers I’ve known. He built block towers and yelled in frustration ... -
‘Burdens and blessings’ By Amy Julia Becker “Penny’s tough.” He said it because he wanted to support us. Peter and I were on vacation with c... -
Looking for an interesting read? Check out the disability and parenting stories we've collected recently. But first, I'd like to int... -
As we drove west to Chicago last week I travelled a route I knew so well over 20 years ago as a university student in London, Ont. At the ti... -
I was elated when I read this blog post by Anchel Krishna at Today's Parent. It's about her daughter, who has challenges speaking, ... -
A number of bloggers wrote recently about the death of Gemma Hayter (above), a 27-year-old British woman with intellectual disability who wa... -
Ben's favourite weather is rain. When he gets up in the morning he looks for clouds and dark sky out his window. He's been known to ... -
A recent Pediatrics study found siblings of children with disabilities were almost three times more likely to have parent-reported emotion... -
This post by parent blogger Heather Hamilton really made me sit up and think: Finding 'normal' . In it, Heather, who lost her son Za...
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- parent-to-parent support
- parenting
- Parenting kids with disabilities
- parenting kids with disabilities; siblings
- parenting kids with disability
- parenting kids with disability;
- parenting kids with disability; acceptance
- parenting kids with disability; acceptance; stigma
- parenting kids with disability; adulthood; day program;
- parenting kids with disability; adulthood; grief; new york times motherlode; susan senator
- parenting kids with disability; amputee; BJ Miller
- parenting kids with disability; appearance; beauty
- parenting kids with disability; cerebal palsy; milestones
- parenting kids with disability; cerebral palsy; research; exercise; participation
- parenting kids with disability; complex medical needs
- parenting kids with disability; discrimination
- parenting kids with disability; donation; BLOOM
- parenting kids with disability; down syndrome
- parenting kids with disability; Down syndrome; discrimination; intellectual disability; inclusion
- parenting kids with disability; exercise;
- parenting kids with disability; friendships
- parenting kids with disability; health-care team; professionals; partnership; professionals; partnership; family-centred care
- parenting kids with disability; hospitalization
- parenting kids with disability; hospitalization; deaf culture; autism
- parenting kids with disability; hospitalization; special needs; rehab
- parenting kids with disability; inclusion; developmental disability
- parenting kids with disability; individual education plan
- parenting kids with disability; inpatient rehab
- parenting kids with disability; intellectual disability; mr men books
- parenting kids with disability; language; culture; Canadian somali community; accessing services;
- parenting kids with disability; maine adaptive sports and recreation; canadian association of disabled skiing
- parenting kids with disability; marriage
- parenting kids with disability; multiple disabilities; autism; intellectual disability; cerebral palsy; asperger's
- parenting kids with disability; multiples
- parenting kids with disability; orthotics; superheroes
- parenting kids with disability; parenting kids with special needs
- parenting kids with disability; recreation
- parenting kids with disability; rehab; brazil
- parenting kids with disability; respite; transition to adulthood
- parenting kids with disability; retard; autism; disability hate crime
- parenting kids with disability; risks;
- parenting kids with disability; school; intellectual disability
- parenting kids with disability; schooling
- parenting kids with disability; seeing through a parent's eyes
- parenting kids with disability; siblings
- parenting kids with disability; special needs; hopeful parents
- parenting kids with disability; special needs; wheelchair
- parenting kids with disability; special needs; wheelchair;
- parenting kids with disability; stress reduction; stress
- parenting kids with disability; summer camp
- parenting kids with disability; the boy in the moon; ian brown
- parenting kids with disability: amputee; difference; palliative care; Serenity Prayer; Dr. BJ Miller; Zen Hospice Project; disability
- parenting kids witih disability; marriage; special needs; stress
- parenting with a disability
- parenting with a disability; rehab; post-surgery
- parenting; cerebral palsy; disability; tips; transition; adulthood; independence; Parent-talk;
- Parenting; disability; abuse; abuse rates; World Health Organisation; WHO; the Lancet
- parenting; disability; special needs; stress; anxiety; depression; mental health
- parenting; parenting kids with disability;
- parents as therapists
- parentscanada; down syndrome
- patience
- patient safety; adverse events; family reporting
- patient stories
- patient story
- patient-centred
- pdd-nos
- pediatric stroke
- pediatrician
- pediatricians
- peer support
- Pelizaeus-Merzbacher disease
- Pelizaeus-Merzbacher disease; PMD; degenerative; ventilator; siblings; fatal illness; injustice; Parent-talk;
- people with disabilities
- perinatal quality collaborative of north carolina
- person-directed planning; life plans; intellectual disability
- Peter Singer
- philanthropy; parenting kids with disability; bill holland; ci financial corp
- philip seymour hoffman; simon critchley; joel yanofsky; ohio family health survey; stress; parenting kids with disability; financial and psychological stress
- photos
- photoshop
- physical activity
- physical activity; recreation; exercise; kids with physical disabilities;
- physical disability
- physical health
- physician
- physio; hospitalization; parenting kids with disability
- physiological signals
- Pia Pearce
- picture day
- pierre robin sequence
- planet of snail
- plastic surgery; ethics; decision making
- playgrounds
- plucking wolf fur; james shea; parenting kids with disability
- poet in residence
- poetic medicine; john fox; lisa levinson; blythedale children's hospital; the institute for poetic medicine
- port wine stain
- positive exposure
- positive exposure; rick guidotti; chromosome 18
- positive psychology
- posttraumatic growth; Parenttalk; advocacy; disability; parenting; chronic health conditions; Journal of Palliative Medicine
- potty training
- prader-willi syndrome; duchenne muscular dystrophy; odds; lottery; percentiles
- pregnancy history
- Prejudice
- premature babies
- prenatal genetic testing; Down syndrome; alpha fetoprotein blood test;
- prenatal screening
- prenatal testing
- president obama
- preventable death
- priorities
- Pro Bono Law Ontario
- processors
- professionals; partnership; family-centred care; disability; special needs
- profound disability
- prognoses
- project revision
- Project Search
- Proloquo2Go
- protecting our tomorrows
- Provincial Advocate for Children and Youth
- provincial advocate for children and youth; cerebral palsy; non-verbal; advocacy; siblings
- Psychological Medicine
- public attitudes
- public reporting
- public school
- QALY
- quadriplegia
- quadriplegia; technology
- quality of life
- quality of life; severe disabilities
- questions
- rachel adams; raising henry; a memoir of motherhood
- Rachel Coleman; parenting multiple kids with disability; signing time
- rachel johnson; lift animation; henrietta bulkowski; the toll collector; intellectual disability; physical disability
- racism
- Rahm Emanuel
- RARE
- rare disorders
- Rare;Down syndrome;Judith Thompson;play ;Fringe Festival 2012
- recreation
- reelabilities
- rehab
- rehab; normal; fixing; acceptance; university of toronto; bloorview research institute; international classification of functioning
- repetitive behaviours
- research
- Research-hits
- research; health care costs; complex care; termination; withdrawal of care
- research; neurotribes; genetics; intellectual disability; autism; steve silberman
- residential
- resilience
- resistance
- resources
- respite; parenting kids with disability
- restaurants
- retard
- retard; ann coulter; mitt romney; intellectual disability
- retarded
- rett syndrome; grief; parenting kids with disability
- rich donovan
- rich donovan; fifth quadrant analytics; return on disability rating; LIME connect; Walgreens; disability market; new york subway system
- rick guidotti
- Rick Mercer; Variety Village; accessible; sports; fitness; membership; savings
- Riverside
- Robert Ethan Saylor; Down syndrome; autism; neurodiversity; stereotypes
- robert ethan saylor; motherlode; andrew solomon; far from the tree;
- Role-model
- rollaball
- Ronna Bloom
- ronna bloom; mount sinai hospital; compassion fatigue; university of toronto; health
- Rosa Monckton
- roundup
- Royal Dutch Medical Association
- Runway of Dreams
- ryan knighton
- ryerson
- Ryerson University
- safety
- sandi cox
- Sara Ryan
- Sarah Harmer
- sarah leal
- school
- school; advocacy; behaviour
- science
- scope
- Scott Lentine; arc of massachusetts; autism;
- Searching for Solid Footing
- seatrac; technology; accessibility
- seattle children's hospital
- segregation
- seizures
- seizures; intractable seizures; siblings; parenting kids with disability; brain injury; children's rehab
- Select Committee on Developmental Services
- selective abortion; prenatal testing
- self worth; intellectual disability; l'arche; ellen seidman
- self-care
- self-enhancement bias
- self-harm
- self-injury
- Sequenom
- service criteria; eligibility; intellectual disability;
- service dog
- service dogs
- services
- severe disability
- sexual assault
- sexuality; sex; parenting kids with disability
- sharing diagnosis
- Sheila Jarvis
- shelby nurse
- sheltered workshops
- shelters
- short stature; parenting kids with disability; growth
- Sibling-talk
- siblings
- siblings; developmental disability; caregiving
- siblings; melanie and tommy have two pet rats; parenting kids with disability
- siblings; parenting kids with disabilities; softening; Kelly O'Brien; brain damage; new york times
- siblings; parenting kids with disability
- siblings; parenting kids with disability; Down syndrome
- siblings; parenting kids with disability; guardianship
- siblings; parenting kids with disability; mental health
- siblings; siblings with disabilities; research; Sibling-Talk
- SickKids
- sign language
- Silken Laumann
- Silken Laumann; olympian rower; autism; stepparenting;
- skeletal dysplasia; respiratory infection; intubation; medically fragile; quarantine; colds; intensive care unit; Parent-talk
- sketching
- Slade House
- sleep disorder; Know the Night; Maria Mutch; Down syndrome; autism; jazz; explorers; Antarctic; Parent-talk
- sleep problems
- sleeping
- sleepover
- slow
- slow code
- snaps
- Snoezelen; parenting kids with disability
- snow
- snowboarding
- social
- social agent
- social isolation
- social media
- social media; special needs; parenting kids with disability
- social work; adulthood; independence; disability; adult services; pediatric services; Ontario Disability Support Program; Developmental Services Ontario; Holland Bloorview; Staff-stories;
- sociology
- softening
- something for the pain; paul austin; down syndrome; emergency room
- something for the pain; stereotypes; people first language
- sophia isako wong; eva feder kittay
- spasticity
- special education
- Special in Uniform; Israeli Defence Forces; disability; special needs; training; army; autism; Down syndrome; Yossi Kahana; Clinical-care; Israel
- special needs
- special needs; Anjet van Dijken
- special needs; disability; employment; parenting kids with disability
- special needs; holidays; stress; christmas; fragile x
- special needs; parenting kids with disability
- special needs; single parents; parenting kids with disability; respite
- Special Olympics
- special sparkle
- specialized school
- speech
- speech therapy
- speech therapy; apraxia; oral motor problems; non verbal; hearing loss
- speech; augmentative communication
- speech; augmentative communication; AAC; Pierre Robin sequence; cleft palate; apraxia
- spina bifida
- spinal cord injury; acquired disability; carolyn pioro; special needs; disability; parenting; paralysis
- Spiral Garden
- spousal abuse; psychological abuse; caregiving
- Spread the word to end the word
- spread the word; r-word
- staff stories
- Staff-stories
- stand clear of the closing doors; autism; trailer;
- starbucks
- stares
- stem-cell research
- Stephen Dubner
- stephen unwin; a day in the life of joe egg; epilepsy; intellectual disability
- stereotypes
- stereotypes; down syndrome; advertising; media
- stereotypes; parenting kids with disability; psychology today; dr. fredric neuman; with a little moxie; meriah nichols; autism; transplant; abuse
- Steven Levitt
- stigma
- stories
- stories; narrative medicine; clinicians; family centred care
- story ideas
- stress
- stress; parenting kids with disability
- stroke
- stronger
- Stumbling on Happiness
- Sturge Weber syndrome
- success
- sue austin; freewheeling; underwater wheelchair; stereotypes; scuba diving; cultural olympiad; olympics; paralympics
- sue austin; underwater wheelchair
- suicide
- Sunshine Foundation; parenting kids with disability; camp
- surgery
- surgical induction; parent presence; parenting kids with disability
- susan senator
- Susan Senator; autism; advocacy; autistic self-advocacy network; Parent-talk; siblings; limited speech; isolation; exclusion; inclusion
- susan senator; autism; day program; transition
- synchronized swimming
- synthetic happiness
- Tali Berman
- Tango
- teaching
- teasing
- technology
- technology; parenting kids with disability; communication;
- ted talk
- tekeal riley
- terminal illness; life-threatening illness
- termination
- the anti romantic child; autism
- the black swan; random; unpredictable; blame game; nassim taleb
- the boy in the moon
- The Boy Who Can
- The Brothers and Sisters Book
- the case against perfection
- the child who never grew
- The Crash Reel
- The Enough House
- The Fall: A Father's Memoir in 424 Steps
- the four walls of my freedom; severe disability; capability approach;
- The Harvard Crimson
- the Hebrew University; dr. Ruth Kannai; prenatal testing; termination; Gaucher's disease; narrative medicine
- the memory clinic; tiffany chow; doctor patient relationship; penguin
- the moon
- The National
- the new york times; retarded; international business times; slur
- the pearls project; from stigma to super model; differences
- the power of the powerless; wall st. journal; parenting kids with disability; special needs; brain damage
- the revised fundamentals of caregiving; the brief wondrous life of oscar wao; this is how you lose her; the sun
- the shape of the eye; intellectual disability
- The Short Bus: A Journey Beyond Normal
- the stars
- the strange language of doctors
- The Wall; Le Mur; French psychoanalysis; autism;
- The way he looks
- therapeutic clowns
- therapeutic clowns; prenatal testing; autism; special needs; parenting kids with disability
- therapy
- therapy; outcomes
- therapy; parenting kids with disability
- therapy; values; balance
- Think Like A Freak
- three days to see
- three days to see; michelle smith; perkins school for the blind; asperger's
- three to be; neurological disorders
- tibetan prayer flags
- Tim Cook
- Tim Horton's
- to the max
- today's parent; anchel krishna; sign language; speech; communication
- toilet training; cornelia de langue
- Tomasz Śliwiński
- topics
- Toronto
- Toronto Life
- touch typing
- tracheotomy
- transition
- transition; independence
- transplant
- transplant; intellectual disability; communications
- treatment
- triathlon; Family
- Triluma Living Collaborative
- Trinity College Dublin
- Trisomy 13
- trisomy 13; trisomy 18
- trisomy 18
- trisomy 18; heart surgery;
- Turning Pointe Academy of Dance
- tv
- tvo
- tying your own shoes; down syndrome; parenting kids with disability
- typing
- United Cerebral Palsy
- universal design
- university
- university health network
- University of Alabama
- university of bristol
- University of California
- university of guelph
- university of toronto
- University of Toronto;
- unschooling
- Upsee
- US Department of Defense
- use your words
- Vancouver 2010 Olympics
- Vanderbilt University
- variety village
- vegetative state
- ventilator
- ventilators
- ventilators; children who are ventilator dependent; a good and perfect gift; amy julia becker; down syndrome; parenting kids with disability
- video clips
- video games; cerebral palsy; therapy
- videoconferencing
- Videos
- violence
- virtual music instrument; adapted music; quadriplegia
- visual arts
- voice device
- voice technology
- wait
- wait lists
- Walgreen's
- walker
- walking
- walking harness
- ward family summer student program; bloorview research institute; healthy body scorecard
- water exercise
- we are fine enough; marc schlossman; autism
- weather
- weight management
- welcome to holland
- wheelchair
- when somebody loved me; toy story; jessie
- white-blonde hair
- wholeness
- Williams syndrome
- willowbrook
- Wings of Hope
- winter
- withdrawal of artificial nutrition and hydration in newborns; jonathan hellmann
- withdrawal of care
- withdrawal of fluids in newborns
- women
- women and disability
- women with disabilities
- wonder baby; perkins school for the blind; vision impairment; multiple disabilities
- woodbine house; sex education; boys guide to growing up
- woodlands school
- word use
- worf hirschhorn syndrome
- world autism awareness day
- world health organization
- world's best non-profit blogs; mark schaefer; helen brown
- worry; emotions; parenting kids with disability
- xavier le pichon; fragility; empathy; plate tectonics;
- xavier pichon
- yoga
- york university
- york university; Nazilla Khanlou; parenting kids with disability; service barriers; language barriers; cultural barriers
- young carers
- youth
- Youth Drop In
- Yummy Mummy Club
- Zack's dream room
- zippers
- zookeeper
Arsip Blog
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2011
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Juli
(21)
- The absence of normal 'frees us'
- Technology in school
- I don't like explaining disability
- Work and severe disabilities
- At the barre
- Mock my pants, not my sister
- Wordless
- Ben's story
- He's on a roll
- Too disabled? Not disabled enough?
- The boy is back
- Disability and quality of life
- When 24-7 caregiving destroys a marriage
- Kumon man
- What about me?
- Get your cameras ready
- Your declaration of interdependence
- High-needs parenting: It takes a mental toll
- Choosing Carter's voice device
- What matters
- On the road
-
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Juli
(21)
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